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Tag: Diane Gross

Taking Care of Yourself as You Grow Up with Lupus

We are excited to participate in a new program at the American College of Rheumatology meeting this year – co-authoring a presentation in the Patient Perspectives session. Diane Gross, National Director of Advocacy and Programs worked with Denita Perry, a young woman living with lupus since her childhood to create a poster presentation called “Learning […] Read More

Advocacy on the Personal Level

“Advocacy has many forms, including taking action for one’s own health. It’s self-advocacy  — even though many would not think of their actions this way,” explains Diane Gross, National Director of Advocacy and Programs at the Lupus Research Alliance. “When patients hear that their insurance company is not going to pay for a medication and then […] Read More

Advocacy: The Critical First Step

Advocacy can mean different things to different people. Some seek to make changes in policy and funding at state and federal levels by helping Congress and government agencies better understand what it means to live with lupus. For others, advocacy is a way to take action with respect to their own health. Regardless of the […] Read More

because the Lupus Research Alliance board of directors funds all administrative and fundraising costs