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Tag: lupus

Amanda Greene Advises on Talking About Your Lupus

There are few things that a person living with lupus can control.  The how and when we share our healthcare journey with others is one that we as people living with lupus do have control over.  Each person living with lupus is unique and after 36 years as a lupus patient, I believe that some […] Read More

Lupus: Patient Voices Report Released Today

March 7, 2018 Lupus: Patient Voices Report Released Today We are pleased to announce the release of Lupus: Patient Voices, a comprehensive report based on input from the Externally-led Lupus Patient-Focused Drug Development (PFDD) Meeting and pre-meeting survey conducted last fall. This report includes data and personal accounts from people with lupus on symptoms, daily […] Read More

Celebrate Black History Month!

Celebrate Black History Month! What better time to recognize the contribution of someone who is working to help the lupus community, and particularly concerned with overcoming disparities in care most striking among African Americans. As a 2017 Novel Research Grant recipient, Andrea Knight, MD, MSCE of Children’s Hospital of Philadelphia is leading a clinical study […] Read More

4th Annual Rally Serves Lupus Research

            4th Annual Rally Against Lupus Serves Lupus Research Lupus Research Alliance Board member Nadeem Meghji, with event Co-Chair Donald Provost and committee members Shannon Ching, Rachel Doyon, Andrea Drasites, and David O’Neill — again created a fun and interactive ping pong fundraising event at SPiN New York. Rally Against […] Read More

2017 Lupus Insight Prize Winner

2017 Lupus Insight Prize Winner Shares Her Insights About Childhood Lupus Dec. 20, 2017.  In piecing together the many complex and varied parts of the lupus puzzle, Virginia Pascual, MD — this year’s winner of the Lupus Insight Prize — looks to her own patients for answers. As a clinician and a scientist, Dr. Pascual’s […] Read More

Lupus Research Alliance’s Breaking Through Gala

Lupus Research Alliance Welcomes Steve Burke, Selena Gomez, Seth Meyers and Kelli O’Hara to Breaking through Lupus Gala Raises Over $3.2 Million for Lupus Research November 21, 2017 – New York, NY – The Lupus Research Alliance celebrated the 2017 Breaking through Lupus Gala to shed a spotlight on breakthroughs from the previous years, and […] Read More

Lupus Research Alliance Prompted Stelara® Study for Lupus

Lupus Research Alliance welcomes compelling new data, presented at the American College of Rheumatology (ACR) annual meeting that demonstrated significant benefit for lupus patients treated with Stelara® (ustekinumab), a prescription medicine from the Janssen Pharmaceutical Companies. Stelara® is not approved for the treatment of lupus, but is approved by the FDA for certain autoimmune diseases. Through its drug repurposing program, the Lupus Research Alliance first identified Stelara® as a potential treatment for lupus and encouraged Janssen to pursue testing for this use. Read More

because the Lupus Research Alliance board of directors funds all administrative and fundraising costs